Chiari Malformation

Arnold Chiari Malformation

Neurosurgery Fitzpatrick Chiari Fund

NFCF is lighting the way of research, education and patient/family support and guidance.  We as a family have experienced the Chiari journey twice and learned that there is a wealth of information waiting to be found about this condition.  NFCF has joined forces with Dr. Kerry Crone, Director Pediatric Neurosurgery at Cincinnati Children’s Hospital Medical Center to be on the forefront of medical research, clinician and community education and patient support.

“The Fitzpatrick Fund will provide the opportunity for CCHMC to move forward in our mission to further understand the pathology and physiology of Chiari malformation and our goal to develop a classification system that better describes the condition.  Long term studies are needed to provide information regarding the functional outcome for children with Chiari. We have a large population of families with familial Chiari malformations. Working with our genetic division we hope to identify specific patterns that may be of benefit to those families.  Every dollar raised will be used in our goal to further understand the condition, its natural history in those untreated, inheritance patterns in familial cases, and functional outcomes in all children.” ~ Dr. Kerry Crone

 

NFCF Fundraising Events:

The Savannah Center proudly invites you to join them in the first annual “Lighting the Way” event. Come and celebrate 80’s style, the first diagnosed chiari case at Cincinnati Children’s Hospital Medical Center by Dr. Kerry Crone.

Friday, October 24            Savannah Center, 5533 Chappell Crossing Blvd, West Chester, OH, 45069                  8:00pm - Midnight

Ticket information:                                                                                                                            Hosted by    Dr. & Mrs. Jim and Leeann Fitzpatrick

$60 each

Includes heavy hors ’d’ oeuvres                                                                               Master of Ceremonies and Auction

Includes 2 drink tickets                                                                                            Sandra Ali, WLWT News Channel 5

Cash bar also  available                          Live & Silent Auction items include (and are not limited to) sports memorabilia and tickets, weekend getaway, kid’s package, spa package

About NFCF

Our mission is to clarify the uncertainties, identify and define the unknowns and begin to focus on the future of Chiari.  NFCF will allow Cincinnati Children’s Hospital Medical Center the opportunity to further their mission of understanding and researching the physiology of Chiari 1, as well as to better classify the variances of the condition. Secondly, NFCF will focus on creating community awareness and clinician education concerning signs, symptoms, treatment options and care of individuals. The final mission of NFCF is to be a resource of support for patients and families as they experience the Chiari journey.             

Contacting NFCF

NFCF on the web: www.nfcfchiari.com

NCFF via telephone: (513) 588-6684

NFCF via mail: NFCF, PO Box 1489, West Chester, OH, 45071-1489