Chiari Malformation

Arnold Chiari Malformation

Message board support groups

There are a lot of support groups.  Here are some to get you started connecting with other Chiarian's.  You will have to join these groups and organizations to be a part of the message boards. 

On Yahoo!:

http://health.groups.yahoo.com/group/CCIparents/ Chiari Connection International Parents (CCIParents)

health.groups.yahoo.com/group/Chiariansunite 

http://health.groups.yahoo.com/group/chiari/ The World Arnold Chiari Malformation Association (WACMA)

http://health.groups.yahoo.com/group/ChiariConnectionInternational/  Chiari Connection International  (CCI)

http://health.groups.yahoo.com/group/wacmaparents/ World Arnold Chiari Malformation Association Parents (WACMAparents)

http://health.groups.yahoo.com/group/wacmakids/  WCMA kids  (for kids and young adults who have Chiari)

On MSN:

http://groups.msn.com/arnoldchiarimalformation  Arnold Chiari Malformation

http://groups.msn.com/AngelsOfArnoldChiariMalformation/welcome.msnw Angels of Arnold Chiari Malformation


Organizations 

http://asap.org/forum/index.php    ASAP message boards

http://conquerchiari.org/onlinemeetingplace/login.asp   Conquer Chiari Meeting place

www.chiariansunite.org    Chiari People of Ohio


Myspace Groups:

http://groups.myspace.com/index.cfm?fuseaction=groups.groupProfile&groupid=106966530&Mytoken=31A35ECC-564B-40C7-841F06259A6CB9DD52713440  Chiari Malformation Study Expressway

http://groups.myspace.com/index.cfm?fuseaction=groups.groupProfile&groupid=106716823&Mytoken=31A35ECC-564B-40C7-841F06259A6CB9DD52713440  The Chiari Malformation Group

http://groups.myspace.com/index.cfm?fuseaction=groups.groupProfile&groupid=101630632&Mytoken=31A35ECC-564B-40C7-841F06259A6CB9DD52713440  Syringomyelia & Arnold Chiari Malformation

http://groups.myspace.com/index.cfm?fuseaction=groups.groupProfile&groupid=100634780&Mytoken=31A35ECC-564B-40C7-841F06259A6CB9DD52713440 Arnold Chiari Malformation


UK Groups

www.chiariforums.co.uk    UK Chiari Forum